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Join the Cause

Parents who receive this diagnosis for their children are told that there are no treatments available due to the rarity of the condition, and often find our online parent support group searching for answers on their own.  There is little incentive for companies to develop drugs for ultra-rare conditions like GABRB2.  We are raising money to fund research with the goal of finding a cure for this condition.

We have partnered with Rare Village Foundation, a 501c3 organization, to sponsor a fund dedicated to our GABRB2 cause.   They provide resources for rare families to connect, collaborate and create the change needed for their children.   Please consider helping us by visiting our donation page and making a tax-deductible contribution.  

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