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GET TO KNOW OUR KIDS

Francesco

Clark

Hi, my name is Francesco.  I was born on November 23, 2013 and I live in Rome, Italy. When I was born, my mom and dad were very happy about it, but after some time the worries began. 

Clark is a 5 year old boy who lives in CT, USA with his parents and two younger sisters. His favorite things are Elmo, rhythmic music, and toys with lights.

Meet the Kids: Meet the Team

Briana

Colton

This is Briana. Briana is a 15-year-old girl who lives in WY, USA with her parents and her older sister. Briana loves Minnie Mouse, Cop shows and spinning toys. 

​Colton John Armengol was born on March 16, 2000, in St. Louis, Missouri.

At 3 months…noticed development delays…took him to world renown pediatric neurologist in NYC to better understand what was going on…did a skin biopsy that revealed nothing after 6 months of testing 

Agata

Agata was born on 03.11.2018. First seizures started at eight months old. In april 2020 Whole Exome Sequencing revealed a de novo mutation within GABRB2 gene.

Zayden

On the 8th of September 2016, my soulmate was born. He came into the world in a body that didn’t work, but his heart and soul was stronger and more loving than anyone I had ever known. 

©2022 by CureGABRB2.

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