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Hi, my name is Francesco.  I was born on November 23, 2013 and I live in Rome, Italy. When I was born, my mom and dad were very happy about it, but after some time the worries began. 

Clark is a 5 year old boy who lives in CT, USA with his parents and two younger sisters. His favorite things are Elmo, rhythmic music, and toys with lights.

Meet the Kids: Meet the Team



This is Briana. Briana is a 15-year-old girl who lives in WY, USA with her parents and her older sister. Briana loves Minnie Mouse, Cop shows and spinning toys. 

Colton John Armengol was born on March 16, 2000, in St. Louis, Missouri.

At 3 months…noticed development delays…took him to world renown pediatric neurologist in NYC to better understand what was going on…did a skin biopsy that revealed nothing after 6 months of testing 


Agata was born on 03.11.2018. First seizures started at eight months old. In april 2020 Whole Exome Sequencing revealed a de novo mutation within GABRB2 gene.


On the 8th of September 2016, my soulmate was born. He came into the world in a body that didn’t work, but his heart and soul was stronger and more loving than anyone I had ever known. 

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